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Haemophilia Association of Mauritius (HAM)

HAM is dedicated to enhancing the quality of life for individuals living with Haemophilia and other bleeding disorders in Mauritius. The association focuses on providing support, education, and advocacy to ensure that those affected receive the necessary care, resources, and opportunities to lead fulfilling lives.

 

Accreditation Number with the National Social Inclusion Foundation: N/1349

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Services offered
  • Creating public awareness about Haemophilia and other inherited bleeding disorders to foster understanding and support.
  • Advocating for the rights and needs of individuals with Haemophilia to the Government, aiming for improved treatment and healthcare services.
  • Organising regular medical update sessions for Mauritian doctors, conducted by international healthcare professionals, covering various aspects of Haemophilia and other bleeding disorders.
  • Providing medical testing services to identify potential patients with Haemophilia and other inherited bleeding disorders.
  • Offering counselling to beneficiaries on effective treatment options and management of their condition.
  • Conducting home visits to provide personalised support and care to individuals with Haemophilia.

 

Beneficiaries: Persons suffering from Haemophilia and other inherited bleeding disorders. Currently, the association supports 95 beneficiaries.

History

The Haemophilia Association of Mauritius (HAM) was established in 2008 by a dedicated group of parents and patients. Their primary goal was to enhance the medical care available to individuals living with Haemophilia in Mauritius. Since its inception, HAM has been committed to advocating for better treatment, raising awareness, and providing comprehensive support to improve the lives of those affected by Haemophilia and other bleeding disorders.

Objectives
  • To create awareness about Haemophilia and other bleeding disorders.
  • To network and collaborate with related associations at local, regional, and international levels to share knowledge and resources.
  • To raise funds to support patients suffering from Haemophilia and other bleeding disorders.
  • To advocate for improved treatment and management of Haemophilia and other bleeding disorders.
  • To secure an adequate supply of safe treatment products for individuals with bleeding disorders.
  • To educate and empower patients with bleeding disorders to help them live healthier, longer, and more productive lives.
  • To facilitate training for healthcare professionals to ensure proper diagnosis and management of patients with bleeding disorders.

To undertake supportive activities that are conducive to achieving these objectives.

Main achievements
  • Increased awareness and treatment: Many individuals have been sensitised about Haemophilia and have started treatment, preventing severe health complications or even early death.
  • Availability of Clotting Factor Concentrate: Clotting Factor Concentrate is now available at all five regional hospitals in Mauritius.
  • Healthcare Professional training: Over 300 healthcare professionals have been trained to properly diagnose and manage Haemophilia and other bleeding disorders.
  • Medical Alert bracelets: Patients have been issued medical alert bracelets to ensure their condition is known in case of emergencies.
  • National Register development: A national register has been developed to track and manage patients with Haemophilia and other inherited bleeding disorders, ensuring better care and resource allocation.
Sources of funding
  • CSR (Corporate Social Responsibility) Contributions
  • Financial support from individual donors
  • Flag Days
  • Fundraising Events
  • International Funders